High court issues notice to Centre on treatment of baby suffering from SMA disease


Bengaluru, Sep 28 (IANS): The Karnataka High Court (HC) has issued a notice to the Centre in connection with the medical treatment of a 17-month-old baby suffering from rare Spinal Muscular atrophy (Type 1) disease.

The petition in this regard was submitted by the baby's father Naveen. The bench headed by Justice Krishna S. Dixit heard the matter on Monday.

The petitioner's counsel submitted that the baby suffered from an inherited disease. The treatment is not available in India and the vaccine has to be imported from the US, he said.

It was also submitted that the cost for the treatment is Rs 16 crore and till now Rs 8 crore has been collected through crowdfunding. The baby should be treated before 24 months from birth otherwise it can be fatal. The petitioner requested to give directions to the government to provide a deficit amount for the treatment.

The counsel for the Centre explained that there is a separate policy for the treatment of rarest of rare diseases and medical experts have to take a call on it.

The bench after hearing submissions said since it is a question of the life of the baby, the Central government should make its stand clear on the matter as early as possible and adjourned the matter to October 1. The court also issued notice to the Central government in this regard.

Spinal Muscular Atrophy (SMA) is an inherited disease that affects nerves and muscles, causing muscles to become increasingly weak. It mostly affects infants and children.

 

 

 

 

 

  

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Comment on this article

  • Rita, Germany

    Tue, Sep 28 2021

    Shreenivas Udipi,do you think suppose it is produced here for any normal man to get it?Even normal medicine or oeration is out of reach.This vaccine is most probably aethic reason why not available everywhere?

    DisAgree Agree Reply Report Abuse

  • Shreenivas, Udupi

    Tue, Sep 28 2021

    Need to create vaccine in India as more cases are emerging ,usa company has patent their vaccine it can be easy made in india is indian government can tale initiative

    DisAgree Agree Reply Report Abuse

  • vishwadeepak, mangalore/dxb

    Tue, Sep 28 2021

    respect ....

    DisAgree Agree [5] Reply Report Abuse

  • Anticorrupt, Mangalore/ Kuwait

    Tue, Sep 28 2021

    God bless the judge and I hope the government will do the needful. I see this case everyday on Facebook and indeed it is such a relief. May the baby grow up in wisdom and in best of health. God is great!!

    DisAgree [1] Agree [4] Reply Report Abuse

  • Jossey Saldanha, Thane

    Tue, Sep 28 2021

    We Appreciate our Legal System ...

    DisAgree [1] Agree [17] Reply Report Abuse


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